Clinical Translational Core

Objective:

The Clinical Translational Core (CTC) of the Kansas Intellectual and Developmental Disabilities Research Center (KIDDRC) seeks to directly serve and facilitate translational research functions within its portfolio of projects. The CTC is designed to meet the needs of the work in those research themes by centralizing, integrating, and standardizing a set of functions that will allow KIDDRC projects to recruit well-characterized participants for its portfolio of human translational studies in an efficient manner.

Services:

The CTC will provide KIDDRC investigators with access and assistance in identifying potential research participants through four registries (1) an integrated data repository linked to electronic health records at KUMC, as well as to other regional databases that access records of individuals with IDD; (2) continuing to build a registry based on a regional clinic to which children are referred for a potential diagnosis of autism spectrum disorders (ASD) or developmental delays (this registry will be integrated with the KUMC repository); (3) a registry of facilities that house, advocate for, or otherwise serve individuals with IDD across Kansas and 14 other states derived from a partnership with the Kansas University Center for Excellence in Developmental Disabilities (UCEDD); and (4) centralization and maintenance of a registry containing information on typically-developing (TD) infants and children that has been used to support normative research on developmental science. The core will also provide support for investigators needing assistance with human behavioral phenotyping of IDD conditions, by assisting investigators with establishing and maintaining partnerships with school districts in Kansas City-Lawrence-Topeka corridor, and by sponsoring investigators’ presence and visibility at community and commercial events targeted to specific populations and age groups.

John Colombo, Ph.D.

785-864-4295

colombo@ku.edu

Co-Director

Russell Waitman, Ph.D

rwaitman@kumc.edu

Co-Director

Sean Swindler

913-945-6840

sswindler@kumc.edu

Core Manager

Li Huang

lhuang2@kumc.edu

Informatics Coordinator

Rene Jamison

913-588-5590

CCHD Registry Coordinator

Susan Palmer

785-864-0207

spalmer@ku.edu

UCEDD Facilities Registry Coordinator

Matthew Mosconi

mosconi@ku.edu

Behavioral Phenotyping Advisor

Krista Voelmle

k545v077@ku.edu

Research Assistant

Ashley McGrath
 

913-945-7322
 

Research Assistant

 

 

 

John Colombo, Ph.D.

785-864-4295

colombo@ku.edu

Director

Russell Waitman, Ph.D

rwaitman@kumc.edu

Co-Director

Sean Swindler

913-945-6840

sswindler@kumc.edu

Core Manager

 

 

 

John Colombo, Ph.D.

785-864-4295

colombo@ku.edu

Director

Russell Waitman, Ph.D

rwaitman@kumc.edu

Co-Director

Sean Swindler

913-945-6840

sswindler@kumc.edu

Core Manager

 

 

 

John Colombo, Ph.D.

785-864-4295

colombo@ku.edu

Director

Russell Waitman, Ph.D

rwaitman@kumc.edu

Co-Director

Sean Swindler

913-945-6840

sswindler@kumc.edu

Core Manager

 


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